One child named Alexander who was diagnosed with a rare chromosomal defect known as Kleefstra Syndrome – a syndrome that has only 120 diagnosed cases worldwide. And two parents and a sister that were willing to go anywhere and do anything to help him reach his potential because they didn’t believe there was no hope for him.
Soon it wasn’t just his family that believed and wanted to help. People started to ask how they could help with the program. They donated their time, their Aeroplan points, their cooking and sure, their money. All because they could see the program was working. Alexander was improving every day and it was because he had an incredible community of support to draw on. A community of support that can become a model for other families and a network of resources and research that will continue to benefit other kids.
Welcome to Alexander’s Fund.
Our vision is for Alexander to achieve his full potential and for the public and other families with developmentally delayed children to be inspired by and benefit from Alexander, his family and the work of this society.
Our mission is to support Alexander and his family by establishing sustainable funding sources for Alexander’s various therapies. It is equally important for us to help create a network of community support for Alexander that will last him through his lifetime. Lastly, we want to raise awareness of the benefits of and options for early, intensive therapy for developmentally delayed children.
Not many kids can say they have a board of directors on their side. These people are donating their time and expertise to help Alexander continue to flourish.